So that's our most recent update, but we still have a long road with Cait's medical life. She still needs to have her kidneys checked regularly to see how they're doing after the damage that's been done. We also have some more testing that'll need to be done which will give us a better indication of exactly how her kidney looks - and how they are functioning as a whole. We have to watch for signs of kidney blockages, which is a very real side effect of the procedures she's had done. We also have to consider the long term affects almost two years of constant antibiotic use has done to her body, as well as Tylenol and Advil. We know she'll likely have problems when she's older and I feel bad for her. BUT we're also very grateful for this hand she's been dealt. Of all the imperfections she could have had with her body, this is one that has been the best for our family to manage. It's a relatively common and well understood illness. Although she had a very extreme case of it, we're still grateful that we could get answers to our questions and a diagnosis so quickly. We're also so grateful that as of right now it looks like we won't have to go in for the ureteral reimplantation surgery. That one we wanted to avoid at all costs. In November when she had her last surgery, we had the option of going that route, or trying the more simple procedure for the third time. I didn't think the simple one would do the trick, but after some good advice from her Urologist, that's the route we went. And I'm so happy we did! Her urologist is truly amazing, as well as her nephrologist and all their staff. Our family doctor was probably one of the main reasons we got answers so quickly, and his after hours phone calls to our family to update us with test results etc definitely went above and beyond what he was expected to do. But he did...and when he moved away and was no longer our doctor, I can honestly say I had a good long cry! He was such a huge help in all this. Anyway, it's been a tough go, but I recognize there are others who deal with so much more. My prayers are with those families! Everyone has struggles and trials, and I'm just grateful for the ones I have, because I KNOW them, and I can deal with them!
Anwyay, here's Cait playing with the hospital toys, just waiting to go in for her 3rd and hopefully final surgery. She's a champ at the hospital!
1 comment:
A wonderful, positive update on Cait. We wish we could have been around more for these past two years to add our support. But our prayers were answered and Cait is doing well. :)
We love her -- and you, and the rest of your darling family.
Love, G-Ma and G-Pa
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